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VWMawareness
Please help

Group Founder: 4evababy
Description: My 12yr old son has vanishing white matter disease it's a degenerate of the brain it cripples and kills children most do not make it to adulthood I would apreciate your support TIA
Group Type: Public
Members: 29
Category: People > Alternative

The importance of raising awareness (9) 4evababy
Vanishing white matter disease is a rare genetic brain degeneration eating all the white matter protecting the brain, it affects the central nervous system and the spinal chord putting these children...

Leukodystrophy (1) 4evababy
Vanishing white matter disease is one of 40 types of leukodystrophy, before my son was diagnosed I'd never heard of either one

Tadan (0) 4evababy
You can view Tadan's story on utube he was diagnosed at the age of 2 and gained his angel wings at the age of 5, his family still keep there Facebook page active, it's called team Tadan

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